The boys have been enjoying playing an Indiana Jones video game this winter with Stephen.
This has peaked their interest in all things Egypt/mummies.
They also love the movie “Night at the Museum”.
So combining all these interests, we decided to take them to the Field Museum in Chicago.
They had so much fun, and they were so well-behaved! These are two precious and sweet boys.
You should be envious that we get to hang out with these little dudes😊
Make Aware...Advocate...but mostly CELEBRATE!
These two boys bring enormous joy and happiness to our family!
They are worth fighting for and doing whatever we can to help them reach their fullest potential.
Yesterday, I called the pharmacy for a refill on Jonah's Flovent inhaler.
This is a maintenance inhaler that Jonah has been on for many years because of his Reactive Airway Disease (similar to asthma).
The pharmacy needed to contact Jonah's pulmonologist because there were no refills left on the inhaler. This contact prompted Jonah's pulmonologist to contact me with this morning to see how Jonah was doing.
Pulmonology has been following Jonah since he was hospitalized for pneumonia at 7 months old. As a result of that case of pneumonia or perhaps it was the cause of the pneumonia, Jonah has an area of atelectasis on one of his lungs
(Atelectasis (at-uh-LEK-tuh-sis) is a complete or partial collapse of the entire lung or area (lobe) of the lung. It occurs when the tiny air sacs within the lung become deflated or filled with fluid).
This is why Jonah has been closely followed by pulmonology over these past 10 years.
In Spring of 2020, his pulmonologist's plan was to take Jonah off of Flovent and see how he did for the summer and into the fall, with the hope that Jonah was now strong enough to get through a cold/flu season without this inhaler.
However, Covid happened so the doctor recommended staying on the Flovent during the pandemic and then check back Spring 2021 and see how things were going.
So this morning I shared with the doctor that Jonah has been very healthy this past year because he has been home so much. I also shared that Jonah did not catch Covid in December despite the fact 3 of us in the house had it.
His response surprised me! He said that he thinks Jonah can go off the Flovent at this point and that any respiratory issues can now be handled by Jonah's amazing pediatrician.
After 10 years- after many times we thought we'd be done but then Jonah would get a respiratory infection and it would set us back- we are done with pulmonology! I can't believe it. Just like that- our Jonah finally "passed the test".
Of course, the doctor offered he would always be there if something came up that we needed his expertise, but he must feel confident enough in our Jonah to release him from his care.
That was a pleasant surprise!
It's been quite a respiratory adventure!
FROM THIS:
As we have in other years, we are preparing for Easter as a family by using the Resurrection Eggs.
If you don't have these for your family, I highly recommend them! They are a very good way for children to learn the story of Easter.
Amazon link to Resurrection-Eggs
