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JONAH'S HEALTH HISTORY

Wednesday, April 23, 2025

MY DASH

Recently the Milwaukee Brewers mourned the loss of their beloved Bob Uecker.  One thing that was said about Uecker really caught my attention:

"Bob Uecker famously lived a life that 'filled up the dash', referring to the period between his birth and death.  He was a beloved figure in baseball, known for his playing career, broadcasting work, and unique comedic style."

The phrase "filled up the dash" really caught my attention.  

Maybe because I am nearing age 55, maybe because I am going to be a grandma in a few weeks, or maybe because my "career" for the past 26 years has been a stay-at-home- I started to think about how I am filling my dash.  

Then I listened to this song from my praise song playlist, and I really felt like these lyrics captured what I I am trying to do with my dash: simple moments that change the world...

Lyrics of Dream Small by Josh Wilson

verse

It′s a mama singin' songs about the Lord
It′s a daddy spendin' family time, the world says he cannot afford
These simple moments change the world
It's a pastor at a tiny little church
40 years of lovin′ on the broken and the hurt
These simple moments change the world

chorus

Dream small
Don′t buy the lie, you've got to do it all
Just let Jesus use you where you are
One day at a time
Live well
Lovin′ God and others as yourself
Find little ways where only you can help
With His great love
A tiny rock can make a giant fall
Dream small

verse

It's visiting the widow down the street
Or dancin′ on a Friday with your friend with special needs
These simple moments change the world
Of course, there's nothin′ wrong with bigger dreams
Just don't miss the minutes on your way to bigger things, no
'Cause these simple moments change the world

chorus

So dream small
Don′t buy the lie, you′ve got to do it all
Just let Jesus use you where you are
One day at a time
Live well
Lovin' God and others as yourself
Find little ways where only you can help
With His great love
A tiny rock can make a giant fall
So dream small

bridge

Keep lovin′, keep servin', keep listenin′, keep learnin'
Keep prayin′, keep hopin', keep seekin', keep searchin′
Add up the small things and watch them grow bigger
The God who does all things makes oceans from rivers

chorus

So dream small
Don′t buy the lie, you've got to do it all
Just let Jesus use you where you are
One day at a time
Live well
Lovin′ God and others as yourself (others as yourself)
Find little ways where only you can help (only you can help)
With His great love (his great love)
A tiny rock can make a giant fall
Yeah, five loaves and two fish can feed them all
So dream small.












GOOD NIGHT!


UPDATE: Ben also had a sleep study recently.  This was Ben's first sleep study because we never felt like he presented any sleep issues.  However, we felt we should have it checked considering how common sleep apnea is with kiddos with DS.  However, our Ben continues to be built like a tank- he has no sleep issues!  This is great news of course.  But I continue to be amazed that this little guy from a Lithuanian orphanage presents with far less health issues than our little guy who has received the most thorough health care imaginable being born in the USA.  Ben was just born tough- after his heart surgery at 18 months, he just took off health wise and never looked back!

Jonah's sleep apnea numbers went from 32 breathing issues/hour to 19/hour after his tonsillectomy.  Now after his nasal repair surgery, Jonah is down to 6/hour!  6.6 is a great improvement.  In fact, Jonah is now below the number that would warrant the implant surgery for sleep apnea (that was above 9).  So no more surgery needed!


However, his age would show that he should be below 5 for safe sleeping purposes.  So ENT consulted with sleep doctor to see if there was anything that needed to be done to get Jonah down to 5/hour.  Sleep doctor said no interventions needed at this point- she felt comfortable with 6/hour. She did recommended another sleep study in a year to see if Jonah is still in this 6/hour range.  

So great news: Jonah's getting a much better good night of sleep!

Tuesday, April 15, 2025

53 DAYS OF LIVING CAN MAKE AN IMPACT



Here is very beautiful story of parents who chose life.  

Their son only lived 53 days, but he was "a baby who made a bigger impact on the world in just 53 days than most people aspire to in 80 or 100 years on this earth."   (excerpt from "The Witness", Day 41 Spring 2025, publication of 40 Days for Life)

This is an amazing story of life, love, and hope!

Click HERE for the article

A LITTLE BUNNY IS ON THE WAY



 Baby shower time!

Our grandbaby is due at the end of May.  

We are all so excited!

This weekend we hosted Abigail's baby shower in the afternoon.  

In the evening we hosted an "Uncle Shower" which was requested by Jonah.

The boys got a box of baby toys and a LARGE container of hand sanitizer- useful items for these uncles!




Wednesday, April 9, 2025

WHAT GOES DOWN MUST COME UP

Famous sign on the trail warning people 
to be sure they are prepared to travel back up!

Andrew, Stephen, and Eric had an adventure of a lifetime this week: they hiked down to the Grand Canyon, stayed at Phantom Lodge, and hiked back up the next day.

Sunday:5 hours to hike down

Monday:10 hours to hike back up.

What an experience!

The boys and I stayed safely at home.  Thousands of miles away from the rim of the Grand Canyon seems like the safest place for our dynamic duo!

The hike down on South Kaibab Trail

Round trip completed- back up via the Bright Angel Trail