Featured Post

JONAH'S HEALTH HISTORY

Sunday, November 14, 2021

THANKSGIVING OBJECT LESSON


Today we did the following object lesson to teach the boys about thankfulness.

1. Thanksgiving Eye Spy to go along with the theme of looking for clues.

2. Listen to the song "Evidence" by Josh Baldwin.  Explain evidence is finding clues that prove something is true.  Every time they hear the word "evidence" in the song, we had them pretend they were looking through a magnify glass for clues.

3. We showed the boys 2 of their jackets and asked how someone would know which jacket belongs to which boy.  Sometimes it's easy to find evidence.  For instance, if a jacket has a name tag on it, then we know whose jacket it is.  But sometimes, we have to look hard for that evidence.  We looked in the pocket of one jacket and found Jonah's favorite blankie.  We told the boys this was evidence that showed this jacket was Jonah's and not Ben's.

4. Then we talked about sometimes we have very good days, and so it's easy to be thankful and find "evidence of God's goodness".  But on hard days, we might have to look or try harder to find that evidence because we might be upset or sad.  But Psalm 68:19 teaches us that every day God blesses us with things to be thankful for even if we are having a bad day. Then we made this craft that shows things we can be thankful for each day.  After the boys had placed the pictures on the paper, I cut out the middle of the magnifying glass to remind them we have to look for things to be thankful for each day: Evidence of God's goodness.

Psalm 68:19 Blessed be the Lord, who daily bears us up.


 

Wednesday, November 10, 2021

WHAT A GREAT IEP!


 

Today was Ben's IEP meeting.  

Today I had the privilege of sitting for an hour and listen to his special ed teacher, regular classroom teacher, speech therapists, occupational therapist, adapted phys ed teacher and special ed director all talk about how GREAT Ben is doing in school.  Here are some of the comments I heard:

1. He is funny.
2. He is smart.
3. He is hard-working.
4. He is very focused and determined.
5. He is organized.
6. He is a very good independent worker.
7. He is a good negotiator: he knows how to communicate what he wants, but he is also responsible about keeping up his end of the bargain.
8. He is moving ahead in reading.
9. He is moving ahead in counting, adding and subtracting.
10. His handwriting is improving even though he does not have a proper pencil grip.
11.  He is good at typing using the "hunt&peck" technique.
12. His speech is improving.
13. His core strength is improving.

This boy is rocking it!  

How nice to hear how much his teachers and paras enjoy teaching him!  

In regards to my concerns about Ben's social issues, the school team doesn't really see inappropriate social skills from Ben.  It seems to be something he struggles with at home (probably a defiance thing) and out in public (probably too many variables and unknowns for Ben).  

The school setting is one Ben feels very comfortable in, has a lot of structure and routine which Ben loves, and Ben experiences lots of success at school which helps him to feel comfortable and confident in a good way.  

So the school agreed to help us with Ben's social issues by "setting up" situations for him at school where he has to interact with people or students he doesn't know and then help him work through appropriate ways to act in those situations.  I appreciate school's willingness to help us with this.

I don't think I give this little fella enough credit sometimes.


When I think about all his life has been before he came to us and all he has had to adjust to since he came to us,  it's incredible to see how great he is doing.  What a miracle!

I was watching a special needs mom I follow on YouTube, and she stated that she hates IEP meetings because it's an hour of hearing how unsuccessful your child is.  I have actually never felt that way in any of the many IEP meetings I have attended over the years for both boys.  I am always excited to hear about their successes and encouraged to know the school is willing and able to do what needs to be done to help them in the areas they need work.  

But today was even beyond that because today I heard Ben is one incredible little kid that school enjoys having in their classroom each and every day!

Great Job Ben!




Sunday, November 7, 2021

ORPHAN SUNDAY


Our church today acknowledged Orphan Sunday.  We heard a great sermon.  

We were also asked to share our adoption stories.



 

Sunday, October 31, 2021

14 YEARS OLD AND STILL RUNNING!

I mean literally running- he still runs a 1/4 mile with Stephen that ends in an all-out sprint at the end.  Pretty impressive for an elderly dog!

Our dog Tucker just recently turned 14 years old!
He is a very special and loved member of our family.

The three older kids all came home for Tucker's birthday weekend.  As hard as it is to type this, we all know the possibility is great we might not have many more birthdays to celebrate with our dear friend.  


The kids decided to write a letter to the place where we got Tucker.  I think the letter and the photos capture how much this dog means to all of us.

We wanted to send an update on the life of one the dogs from your place. This might not be an email you receive very often, but we thought it’d be nice for you to hear.

We got Tucker “Booker” in the summer of 2008. He was born October 10th, 2007 with parents Emma and Vinny. When we got Tucker, we also met his siblings Spidey and Corky.

Tucker has had a pretty nice life here with our family. He has two older sisters, an older brother, and two younger brothers- lots of kids to keep him company throughout the day. He loves playing fetch with a football in the yard, going for walks down by Lake Michigan, and running with his older brother. Even turning 14 years old this month, Tucker can still keep up with all these activities- he has been an amazingly healthy dog all these years! He has also grown quite fond of being spoiled by his older siblings. Tucker sleeps on one of their beds each night and has his own blankets, which he has become very attached to.

Tucker has always been a more mellow character. We remember this about him from the first time we met him at Pleasantview Pups. Our first memory with Tucker is playing fetch out in your yard, and after being shy with us initially, we saw Tucker outrun his mom Emma to show off his speed and get to the ball first. He’s been a great playmate, a faithful comforter, and a loving friend for everyone in our family.

We’ve attached some pictures of Tucker with our family from all the years we’ve shared with him. We hope you enjoy looking through them and can get a sense of how much Tucker has impacted our lives. He has truly been a blessing to all of us, and we are so thankful for you at Pleasantview Pups for making it possible for Tucker to be a part of our family.








Tuesday, October 26, 2021

DAD IS AWESOME!


 Or another way to say that is “Dad is more fun!”

I spent a week with our oldest daughter up in the Twin Cities.  

Andrew was on 24/7 duty for the boys.

He did great!  The boys had a blast:  Culver’s, pizza, camping in the camper in the driveway, corn maze, and apple picking!






Friday, October 15, 2021

OCTOBER IS DOWN SYNDROME AWARENESS MONTH

 


The boys' special ed teacher and homeroom teacher agreed to show the following video and then give a short presentation to the 5th graders about Down syndrome.  I think it was a great experience for all involved!  



Following is the handout the boys gave to each classmate along with a bag of popcorn.

The teachers also did a drawing with DS awareness bracelets as prizes.

Nice and simple but hopefully had a impact.



Every once in a while, differences between us and you POP up.

 But for the most part, we are all a cool bunch of kids wanting to have fun 

and be the best we can be.

Thanks for taking time to learn about Down syndrome!

Ben and Jonah

*******************************************

FACTS ABOUT DOWN SYNDROME


Down syndrome means we have 3 copies of chromosome 21 instead of 2 copies like you do.

This extra chromosome affects how we

learn

talk

walk

write

behave

Most often we can learn how to do these things just like you. But sometimes, people with Down syndrome have to work twice as hard to learn things that come easy for you. 

HOW CAN YOU MAKE A DIFFERENCE?

Be patient

Be a friend

Be a role model

Offer help if we are struggling with something, but don't do things for us.  We have to learn.

Include us.

THINGS TO REMEMBER

Everyone is different- that's what makes the world interesting



Thursday, October 14, 2021

STILL LEARNING TO BE SOCIAL


 

In preparation for Ben's IEP in November, I typed up this summary of Ben's social skills according to our observations.  I'm anxious to hear school's input on this.


BEN'S SOCIALIZING/MAKING CONVERSATION

 Issues:

1.      Wrong Answer- Doesn't answer questions appropriately or correctly,  ie. "Cow", "Mom", or just babbles.

2.      Delegate- Tries to get Jonah (or someone else) to answer instead.

3.      Whispers answer or answers into his armpit.

4.      Lack of eye contact.

5.      Not Understood- Talks too fast or has trouble with pronunciation.

6.      Shuts down- doesn't make any response.

 

Why we think this happens:

1.      Speech issues- Ben needs to continue learning proper pronunciation and proper speed of speech.

2.      Social Anxiety-  Ben experienced lack of socialization for his 1st 6  years in the orphanage so Ben doesn't feel comfortable or know  how to interact with people appropriately.  His orphanage years I'm  sure play a role, but we are hoping with each additional year Ben      has with us, this becomes less and less of an issue for him.  However, perhaps we shouldn't underestimate how much not having the basic communication foundations for those highly impactful first years is limiting him even now after being with us  5 years…

 NOTE: in our adoption/trauma education we had to take for           the adoption process, we learned that orphanage behaviors can        fade/drop off after the child is home with family for a longer time      than he was in the orphanage.  We are at year 5 1/2 so we are    almost at the half-way mark!

3.      Control- due to Ben's "hard past" of being in orphanage for 6 years, control is always his go-to emotion/goal.  Ben had to look out for himself for 6 years to make sure he survived and got the limited care and attention that was available to him at the orphanage.  So  everything Ben does, unless you can capture him at a moment   where he lets his guard down, Ben wants to control the situation.  It doesn't matter to him if having this control gets him positive or       negative attention, he just wants to be the one to determine what   he will do, how he will do it, and how others should respond/react   to him.  This means if Ben chooses to engage someone in        conversation, you will see a very different style of communication   than when someone else initiates conversation with Ben.  This is        when the issues 1-6 come into play.

4.      Jealousy- This is probably a subset of Control, but I believe Ben has social issues often because he is jealous of others getting attention.  By others, I particularly mean Jonah.  I will often see better social   skills from Ben when he is alone versus when the 2 boys are together.  Again, even if Ben acting inappropriately gets him in trouble, he considers this a win because he probably got more attention, all be it negative, than Jonah during or as a result of the social interaction.

 What we are currently trying to do to help Ben:

1.      Speech therapy at school and thru Rehab Resources.

2.      At home, we go over these Conversation Rules:

                   a. Listen to the question

                   b. Think about your answer.

                   c. Answer the truth.

                   d. Make eye contact.

                   f. Speak clearly

3.      Use of the speech device to assist him in being able to be   understood by those outside his inner circle.

4.      Building upon and encouraging Ben's amazing strengths   

                   a. Ben is very smart.

                   b. Ben has a fun personality.

                   c. Ben is hard-working and determined.

                   d. Ben has good command of the English language despite only learning it starting it at age 6.

                   e. Ben is resilient.  He is tough and strong.  He is a survivor.

                   f.  Ben's potential to do incredible things with his life.

 Possible Action Steps:

1.      Do you agree with all of this information from your experience with Ben at school and/or therapy?  Or is this something that we just  experience at home and social situations besides school?

2.      Are there specific goals/tasks that should be included in his IEP to help Ben in the social area?

3.      Any other help/resources that may be available to Ben to help him improve socially?

4.      Any help/suggestions for Andrew and I as we try to work on these issues at home?