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JONAH'S HEALTH HISTORY

Monday, July 17, 2023

WHAT WE "GOT" ON THE SEVENTH ANNIVERSARY OF BEN'S GOTCHA DAY


Ben on a recent hike at Governor Dodge State Park

Ben became our son through the Lithuanian court system on 7-15-16.  

That means this July we celebrate Ben being in our family for 7 years.

That means pizza party tonight!!!!!

Through research and the many classes we had to take in preparing for our adoptions, we learned an unofficial guideline of adopting a child from a hard place (ie. orphanage, foster care, etc).  The guideline is that generally it takes as many years the child was in his/her difficult situation for the child to overcome any coping/defense mechanisms in interacting with his/her new family.  

So last year was the even split for us, Ben had spent his first 6 years in the orphanage and his next 6 years with us.   This meant this past year was suppose to show us a Ben free of "orphanage junk".  Is that what we saw?  Not really.  

Ben still deals with social anxiety and control issues.  I knew in my head this guideline wasn't a 100% guarantee, but I guess my heart was clinging to it more than I realized.  It's been a bit of a struggle realizing that some of Ben's more challenging behaviors might not ever go away.  Despite all the time, effort, and therapy over these past seven years, Ben still deals with social anxiety and control issues when interacting with people.

Now before I sound too negative, I have learned through our experience with Ben, that it's always important to look at where we have come.  And all of us have come a long way.  Ben definitely feels like he always been a part of our family, and we love having Ben in our family.  He adds an energy and fun to our life that we couldn't imagine not having.  He is great brother, friend, and playmate to Jonah which was one of our hopes and prayers as we thought of adopting a 2nd child with Down syndrome.  And just as important, Ben seems to love being in our family.  He adores his older brother and sisters.  He loves his dog.  He loves going to school every day.  He loves to learn and be challenged.  He loves video games, riding his bike, swimming in our pool, camping, and playing baseball and basketball.  

And in regards to my relationship with Ben, the two of us have also come a long way too.  Ben had the hardest time bonding with me to bond because I was most like the orphanage caregivers he was use to.  I didn't represent anything new and exciting like Andrew and the others did in terms of relationships.  Plus I am Ben's primary caregiver so I feed him, clothe him, and guide and direct most of his activities during the day.  Just like his orphanage caregivers.  And those orphanage caregivers came and went with great frequency so attaching to them wasn't easy or safe for Ben.  So I think it took a while for Ben and I to attach to each other.  But we have gotten there.  In fact, during our recent camping trip, Ben fell off his bike and scraped his tummy.  He came back to our campsite asking for ME!  He wanted me to comfort and care for his owie which is huge!  Not that I wanted him to get hurt, but it was really cool to be his "go-to" person.  

So yes, Ben has made lots of progress over these past seven years.  But as I said before, what we still "got" with Ben on this 7th annniversary are social anxiety and control issues.  The good thing the frequency of these "flare ups" are less than they were in the beginning.  

Of course, the other thing to consider is Ben's struggles may not be 100% orphanage related because Ben may have inherited some of these personality traits from his birth family.   We never met his birth family so we will never know for sure.

In the end, after 7 years home, Ben is kid who has overcome a lot of obstacles and his thriving in amazing ways- way beyond where he would have be if he had been sent on to the Lithuanian mental institution if he hadn't been adopted.  Besides remembering where we have come from, we always have to remember where Ben could have ended up if the Lord hadn't brought him to us.  

Ben is a unique combination of funny, sweet, smart, and complicated.

He probably thinks the same about his family :)      



Sunday, July 9, 2023

CAMPING WITH EXTRA CHROMOSONES

 

We just got back from a six night camping trip.  

So many great memories, and of course, so many unique (and often hilarious) moments that most likely come from the extra chromosones in our family. 

1. Ben's packing: one square of shelf liner and a pencil

2. Jonah's packing: 4 lunch boxes/3 backpacks/2 baskets filled with Little People and other assorted toys plus 2 US maps (to help Andrew find the campground) and 2 Indiana Jones books.

3. Ben mastering taking a bike ride around the campground with a friend- no parent present.  So proud of him!

4. Jonah mastering taking a bike ride all by himself to our friends' campsite, 2 sites down.  

5. Jonah howling in pain as we left the beach because of personal issues :)

6. Us disciplining Ben by taking away dessert because he was late coming back to campsite for lunch only to find out the reason he was late: he was reading a Bible storybook with his friend.  Bad parenting moment :(

7. Frequent guitar/vocal concerts Jonah.  Selections included Christmas music, Beatles, Disney, and nursery rhymes.

8. Jonah not recognizing personal space while swimming: ended up near a trio of 3 pretty girls on floats, and also kicking a different girl in the stomach while he was swimming underwater.

9. Jonah dressing as Indiana Jones for our tour at Cave of the Mounds.

10. Jonah having a bit of a meltdown when he couldn't wear his Indy backpack during the tour.

11. At the end of the tour, when the tour guide asked if there were any questions, Jonah asked her where the ark of the covenant was.  She was speechless...

12. Around the campfire, Jonah acting out the Moses and Pharoah story.  He was Pharoah and used a piece of paper towel and a baseball camp as headpiece.

13. Ben taking a four mile hike with Andrew.  This kid is tough!

This is from one of our hikes.  See me in the background?  
This is progress from 2 years ago when I had to sit right NEXT to the boys 
to keep them from falling/jumping in the stream :) 

This photo isn't from camping, it's from the 5th Indiana Jones movie- Jonah went in costume!




Wednesday, June 14, 2023

JUST HAVE TO BRAG

 

I just have to brag about Ben and Jonah.

We camped at Devil's Lake State Park the past 4 days.

Ben has always been a very good hiker.  
Jonah is a much improved hiker from last year.  

But the boys did a hike on Tuesday that we could not believe 
they were both able to complete.  

They hiked up and down this trail.  
Some of the "steps" looked like this.

And some were actual steps.

This is what we were hiking to- Balanced Rock.

The park literature states 
"Difficulty: Challenging...A difficult, steep, climbing trail with stone steps on the south face of the East Bluff... .4 mile, Approximate hiking time 1 hour"

Our total journey there and back took 1.5 hours.

The boys showed incredible strength and endurance.  We are so proud of them!
  
Interestingly, Ben was scared going up, and Jonah was more scared going down. 
 
Also, Jonah was pretty tired coming down so he needed lots of encouragement, rest stops, and distractions (ie. singing Beatles songs) to keep him moving. 
 
And shout out to two guys we encountered on the way down the trail.  They were very encouraging to Jonah.   Jonah was in the middle of a sit-down protest because he didn't want to go any further.  The guys told him he was tougher than they were because they hadn't even made it to the top yet.  It is always so nice to encounter people who comfortably interact with our guys. 

This is from our hike on Monday where we hiked along the bottom of the ridge.  I think this photo is funny because it looks like our boys caused an rock avalanche.

I love this photo.  You can really see the love between these two.  

Sometimes it just hits me how cool it is that these two goofy guys have each other.  

Friday, June 9, 2023

REASONS I LIKE CAMPING

 


For those who know me, I won't be the first person you would think of who would love camping.  I don't like bugs, I don't like chaos, I don't like to be too hot, and I don't like public restrooms.  

So why in the world do I like camping?  

Here is the mystery revealed:

1. Wisconsin State parks are awesome!  So many pretty trails and lots of nice campsites.
2. My "to do" list is much smaller when camping:    
    a. Meal prep/clean up
    b. Watching the boys
    c. 5 minute cleaning of the camper each day
3. Plus there are items on my camping "to do" list which rarely get included in a day at home:
    a.  Take a hike
    b. Go to the beach
    c. Get ice cream
    d. Read a book
    e. Watch a movie
    f. Take a nap
    g. Play a card/board game
                Notice that absent from this list is laundry, whole house pick up,                         yardwork (for Andrew), errands, therapy appointments, and book                         work.
4. Nobody cares what you look like when you are camping!
5. Falling to sleep with nature sounds surrounding you on all sides of the camper is really cozy!
6. The boys love camping, and it's fun to watch them have an activity they love and are good at.
7. I'm quite spoiled being able to camp in our nice camper instead of a tent. 
8. When I get home, my normal house seems like a palace. 
9. Hiking and biking are good healthy activities for all of us. 
10.  Good reminder of God’s glory and majesty as I enjoy the beauty of His creation. 

Here's to another summer of hopefully great camping memories!




Monday, May 8, 2023

CAMPING AND BIKING!


     
First camping trip of 2023 
in the books as a success!
This is how the ride 
to the campground looked.  
Two boys resting up for 
lots of fun over the next 3 days...

Because of our dog needing someone home to care for him, this trip ended up being a boys' only camping time.  Andrew is quite a brave soul to take this on, but the boys had so much fun with just their incredible dad.  

And the really exciting news about this camping trip is Andrew brought the boys bikes along, and it was a success.  They took 5 bike rides over the 3 days and loved having their "wheels" with them.

We noticed this spring when Jonah got on his bike for the first time here at home, that he was able to pedal farther and faster.  But most importantly, he was able to pedal and steer at the same time.  Last summer, he really struggled with getting tired and also zig-zagging all over the place.  Ben mastered these skills last summer, but we were wondering when biking would get easier for Jonah.  Well, it happened so we decided to give it a try and bring the bikes camping.  How exciting for the boys!

You might notice, the boys are riding 3-wheel bikes.  Neither of them have yet mastered the balancing on 2 wheels.  So we found these amazing "training wheels" that are meant for older kids and adults.  Well worth the investment!  And love it when companies think outside the box to help and support individuals with special needs!

NOTE: the boys attended "I Can Shine" Bike camp in summer of 2021.  It was a great experience which we would highly recommend.  However, they didn't leave the 1 week camp being able to ride on 2 wheels.  After talking to many other parents of kiddos who also participated in "I Can Shine" Bike camps, it's very common that it takes several sessions of the camp to master the skill.  Our boys only attended one session.  We might try another summer down the road to attend 2 sessions and see if that helps along with them being a little older.  

But for now, we are very happy with their Fat Wheels!

Click HERE for Fat Wheels





Monday, April 10, 2023

LOTS TO SAY and READ TO ME

 

Last week, Jonah had some HUGE developments in his speech and reading!


While I was getting ready one morning last week, Jonah got a hold of the IPAD and made his own video.  From the words we can understand, we think he is inviting people (some named specifically, otherwise a general invite to all) to an Easter party at our house (he gives our address).  

I shared this video with his teacher and speech therapists because I had mixed feelings about it.  

On one hand, I was super impressed because 2-3 years ago, Jonah would have never tried to talk this much.  For many years, Jonah would only speak 1 to 3 words at a time.  Talking just wasn't his "go-to" activity.  He had other ways to communicate his wants, needs, and ideas so he didn't have to string together words and talk to us.  So to watch him make a 2 minute video of him just talking away is like music to my ears!  

However, I am a little sad because after all the hard work and therapy, there are many words in this video that I still don't understand yet.  This boy has so much to tell us and such interesting thoughts on life, and I don't want to miss any of it.  He still struggles with the pronunciation of many sounds.  

His teachers and therapists were quick to encourage me though.  They pointed out that if this had been a conversation with Jonah, we would have had opportunities to clarify and ask him questions so we could get a better understanding of what he was trying to say.  So in normal face to face interaction with Jonah, they see great improvement: he is talking more, AND he is willing and able to help clarify what he is trying to say by answering questions we ask.  That is a huge accomplishment and development for him.  We are continuing to move forward and that is always an answer to prayer.


This next video is a new development because for the first time ever, Jonah brought me a book and wanted to read it TO ME.  Usually if I want him to read a book, I have to prompt him to sit down and read with me and then prompt him with sounding the words out.  But on this day, he initiated the activity and initiated the sounding out of the words.  

The other huge accomplishment this video reveals is Jonah is able to transfer his knowledge of his Edmark words (the reading program he uses at school) and read them in a non-Edmark setting.  In the past, he has struggled with that.  So the words he says in the video with great accuracy are his Edmark words and then the other words he is sounding out the best he can.  It probably helped him that he picked the familiar story of "Frosty the Snowman".  

I was so excited when he started reading aloud next to me, and I am so grateful I had my wits about me to record this interaction.  So proud of him!

Ben has always been more verbal than Jonah.  The issue we are working on with Ben is getting him to speak more clearly and then also an issue with social anxiety which present as silly or inappropriate responses when asked questions.  He is slowly making progress, but it is definitely an uphill battle.

In terms of reading, Ben is further along in the Edmark program, but he is way more resistant to sounding out words than Jonah.  

These boys: 
they are the yin to other's yang :)

 





 



  

GOOD FRIDAY IN GREEN BAY

This title has a double meaning.  

Friday was Good Friday as we remember the sacrifice Jesus made for us all by dying on the cross.  The heaviness of Friday is followed by the victory of Jesus' resurrection on Easter Sunday.  What a beautiful weekend of praise and celebration.


Favorite Easter song this yea

But Friday was also a good Friday because we spent it up in Green Bay touring Lambeau Field and then having lunch with dear friends of ours.  We highly recommend both activies if you are ever in Green Bay-haha!

Lambeau Field Atrium

Walking the tunnel onto the Field

On the sidelines of "hallowed ground"

Enjoying the luxury box view
(probably our only chance ever)

Making a play on the field :)