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JONAH'S HEALTH HISTORY

Monday, January 12, 2026

IT'S BEEN A WHILE!


No news is good news is the theory, and that's actually been our reality.  

I haven't posted for quite a bit because things have been running relatively smoothly with the boys.  School is going great, and they are healthy!  

Ben's dental surgery happened on 1-5, and it went very smoothly.  The mystery is somewhat solved as to why Ben all of a sudden got infection in his gums when he's always had great dental checkups.  The dentist thinks the 3 baby teeth that were refusing to come out were causing a great place for bacteria to build up.  Now that these 3 teeth have been pulled, she is very hopeful Ben's gums will get back to their usual healthy again.  That was a relief to hear.

Special Olympics basketball starts up this week.  A big commitment each week but well worth the opportunity for the boys to exercise and have fun with their friends.





Thursday, December 4, 2025

IT'S BEGINNING TO LOOK A LOT LIKE CHRISTMAS


In the inside

And the outside!

We had a great Thanksgiving weekend: 
good food and great fun.

We are all decorated for Christmas, and we have a good 6 inches of snow.  Our past few Decembers have been brown.  Hopefully, this December continues to stay white.

The boys have hit their groove in school after a bit of a shaky start.  They are working hard (most of the time), and their behavior is quite appropriate at school (most of the time).

Ben and Jonah continue to love being uncles to their nephew.  And thankfully, Baby J loves his uncles!  He is very entertained watching and listening to them.  He gives them many smiles and often babbles to them.  
It's very sweet to watch.

Jonah is going to start occupational therapy outside of school.  School did not want to add OT back onto his plan so we decided we would pursue the help privately.  We are working on the goals of safety with life and job skills and how to interact safely with babies and children.  Jonah loves to show affection to Baby J, but he is not always able to grade his strength when giving hugs or touches.  We are very excited for this additional help for Jonah.

The boys start Special Olympics Basketball skills in February.  We are grateful for this time off since football and bowling/Esports are done, but we are excited for them to be able to have a winter activity.

The boys continue to be super healthy except for Ben's dental issues which will hopefully be fixed with January's surgery.  

They are strong and smart young boys- so much to be thankful for!



 

Friday, November 7, 2025

HEALTHY HEART CHECK!

Ben had is 3 year heart echocardiogram and visit with cardiologist today.  Everything continues to look great from his repair done at 18 mths old.  

The cardiologist also has no concerns for Ben’s upcoming dental surgery regarding the anesthesia.

Ben was nervous for the appointment, but he did great!!!

Friday, October 31, 2025

IT'S FALL Y'ALL

 


Annual trip to the Pumpkin Patch

Lots of excitement for our Milwaukee Brewers

Final camping trip of the year at Calumet County Park

Campsite right on the water

Great way to end our camping season!







SCHOOL DAYS

Here's what freshman year looks like so far!  The boys are focusing on academic, social, life, and job skills.

Before we get into the school day photos, I have to brag about Ben.  The boys are in the concert choir at school.  The other evening they were in the performance "Rockets on Broadway".  This involved singing and DANCING for two numbers.  Jonah, for all his love of music and dancing, actually gets stage fright and just stands there barely participating.  But Ben, to our great surprise because this doesn't really fit his personality, was up on stage singing and doing all the choreography!  Why didn't I video this you might ask?  Because I was so shocked it was happening that I barely got a photo of it.  I was so happy and proud of Ben to see him working hard and putting forth so much effort.  It was a really fun night!

Now the school stuff:



Cleaning the Fitness Center


Doing laundry for the Fitness Center


Learning to make their own lunches




 

FALL SPORTS

Fall has been busy for these two guys.  

They are two of the neatest people!
 

For fall activities for the boys, Ben participates in Special Olympics bowling.  

This is his second year of bowling.  We saw great improvement from last year.  

He is learning to keep the ball down the middle of the lane.  He is also almost completely independent while at bowling: he pays for his game, puts on his own shoes, and knows when it's his turn to bowl.  He acts very appropriate while bowling: he sits quietly as he waits for his teammates to bowl, he politely communicates to someone if they are blocking his way to get to the lane, and he even has some conversations with his teammates.  

We are so proud of him!!!!  

Ben also continues to be on the Esports team at school, but I don't have any photos of him- I don't want to be that kind of mom :)

Right down the middle


Jonah is on the junior varsity football team.  He attended one practice each week, suited up for home varsity games to cheer on his team, "played" in the home junior varsity games on Monday nights, and joined his team at then end of game and say "good game" to the opposing team.  

His participation in a game is just like last year for 7th/8th grade football.  At the beginning of half time, one more "play" is run with Jonah getting a handoff and taking it in for a "score".  Somehow, the way is always completely clear for him to get thru :). 
 
We are very thankful for the willingness and cooperation of our coaches and players, the opposing team, and the officials for letting this happen for our guy.  

We can't say enough about our coaches and how open they have been to include Jonah on the team.    

My observation of Jonah being able to play football these past few years is that joy and happiness is not just experienced by Jonah and our family.  I have had coaches, parents, fans, officials, and Jonah's teammates tell us that it is so cool to come alongside Jonah and help him play football.  We are very impressed by the kindness shown by Jonah's teammates.  These guys have helped Jonah with his helmet, shown him how a water bottle works, guide him on what to do during the national anthem, play catch with him on the sidelines, run drills with him, and one of them may even have helped him with a runny nose.  And of course, many of the guys have danced on the sidelines with Jonah!  

It's pretty neat to see inclusion at it's best!

It's hard work sitting on the bench.


Jonah photo bombs the Homecoming Court presentation

Watching his team play during the first half

Coaches giving final instructions to Jonah before the half time play

The way is clear to the end zone

Celebrating and dancing in the end zone 
with his teammates






Wednesday, October 29, 2025

SO MUCH MORE THAN ONE DAY

 

My mom and her younger sister Audrey.  
Such sweethearts!

I’m not sure if I ever told this story before.  

My mother’s youngest sister Audrey had Down syndrome.  She was born in 1934 so things were very different back then for people with Down syndrome.  Parents were often encouraged to have their children institutionalized because there were not many supports in place to help them parent their child with Down syndrome.  

For parents, like my grandparents, who chose to keep their child at home, they were often on their own in supporting their child. Resources like special education departments, physical, speech, and occupational therapy were either not present or very difficult to access.  

My mother and Audrey were 18 months a part in age.  So my grandparents, who were recent immigrants from the Netherlands, sent BOTH girls to the small country school on the first day of  kindergarten for my mom.  

Keep in mind, these 2 little girls lived in a house where Dutch was the primary language while the family was learning English.

At the end of that first day of kindergarten, my grandparents were told not to bring Audrey back to school.  They didn’t know how to teach her.  

That was the only day of school Audrey ever attended.  

Audrey spent her childhood and young adulthood at home with my grandmother.  Incredibly though Audrey was able to understand English and Dutch.  

Fortunately, as her life progressed, so did advancements in special education.  There became more opportunities for people with intellectual disabilities.  Because of this Audrey went on in her adulthood to have a “job” through RCS- a disability services and support organization in our area.  

As a child, I remember being told Aunt Audrey made one Brillo pad a day- not sure if that’s accurate, but it wouldn’t surprise me if her great nephew Jonah had a similar workload someday😊  Jonah loves fun a little more than work-haha.   

When I told our boys about my Aunt Audrey only being able to attend school for ONE day, their eyes got very big.  I think they realized Audrey's one day of school is a very different experience from their education.  

Jonah and Ben have had amazing opportunities these past 15 years.  

1. Jonah started speech (feeding), physical and occupational therapies at 3 weeks old!  

2. He started school at 3 years old in our school’s Early Childhood program.  

3. Our Ben was brought immediately into our school system when he arrived at age 6 from Lithuania.  Our school stepped right up and helped bridge the gap for a little boy who had never had any therapy his first 6 years.  He was still learning English.  Yet our school surrounded him with all the supports and services possible. 

4.  Over the years, we have benefited from the hard work and dedication of the school teachers (both special education and general classroom), therapists, support staff, and administration.

5. As well, we’ve also had great therapists outside of our school system through private speech and physical therapy. 

6. And beyond the classroom, the boys have been welcomed, encouraged and supported to participate in extra curricular activities at school: football, esports, and the school play.  The overall attitude always seems to be “How can we make this work” instead of questioning if it will work- big difference!

7. Also beyond the school classroom, the Sunday school teachers at our church are open and willing to make the Sunday school lessons adaptable to the boys’ level of understanding. 

So looking over this list, we definitely have a lot of gratitude in our hearts.  We are very thankful for each person who has played a part in our boys’ education journey.  These boys always seem to land in sweet places.  We pray this will continue to be their experience in life.  

So much more than one day!