Jonah had his 2nd post surgery follow up appointment with the ENT doctor today. Everything looks great! The choanal atresia repair has remained opened.
Now the next step for Jonah is to have a sleep study on 3-12-25 to see if this repair surgery improves his sleep apnea score. His score before the surgery was 19 events per hour. Doctor says the safe range is 5 and under. Doctor is concerned that Jonah's floppy throat/tongue muscles will still be a factor in causing sleep apnea.
Ben had his 1st appointment with ENT doctor today in order to get an order for his first sleep study. Even though we don't really have any concerns about Ben's sleeping, we felt like he should have a baseline sleep study so we know for sure there are no issues.
One very interesting observation from the ENT doctor is that Ben shows no effect of Down syndrome in his ear, nose, and throat area. His ear canals are wide, his nasal passages are healthy, and he shows no laxitity in his throat/tongue muscles. These are all issues that Jonah deals with. But interestingly enough, Ben does not. So I am guessing Ben will not have any issues show up on his sleep study.
Two very different guys.
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