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JONAH'S HEALTH HISTORY

Thursday, October 13, 2016

PROUD OF OUR SCHOOL BOY!

Ben is now spending 1.5 hours a day in school.  IEP testing should begin soon so then hopefully he can get on a PT/OT schedule also.  
Speech therapy will be further down the road.

These are pictures of Ben on a field trip with his class to the apple orchard.  This makes my heart so happy to see Ben welcomed and liked by his classmates.  I notice the same thing about Jonah and his classmates.

  This is so important that our boys start to be accepted by their peers because hopefully these peers will look out for our boys over 
the next years of school.  




Not to be forgotten, here is Jonah on his field trip.  


Wednesday, October 5, 2016

DOWN SYNDROME AWARENESS MONTH

October is Down Syndrome Awareness Month. 
NATIONAL DOWN SYNDROME SOCIETY

Our family would like to use this event as an opportunity to encourage families to consider adopting a child with Down syndrome.  Children with Down syndrome are available for adoption both domestically and internationally. 

We have adopted two children with Down syndrome, one from the US and one from another country.  

This blog tells the story of both of our adoptions, and shares the huge blessings involved with having children with DS in your family!

Sadly the United States has an 80-90% abortion rate for babies that are diagnosed prenatally with Down syndrome.  For some of these parents facing this diagnosis, perhaps they would consider choosing life and placing their child for adoption if they knew there were families excited to adopt a child with DS.  I believe adoption is key to supporting the right to life in this country.  We need to be there to support and help birth parents in whatever way we can. 

Internationally, many orphans with Down syndrome face a very bleak future.   In many eastern European countries, where we adopted from, many kiddos with DS are left at birth because they have Down syndrome.  They spend their first 5 years in an orphanage, without the love and support of a family.  Then these children are often transferred to a mental institution at the age of 5 where they will spend the rest of their lives.  We as Christian families need to step up and protect these precious children from this horrible fate. 

So if adoption has not been on your family's radar, please prayerfully consider it.

If anyone is interested in finding out about this incredible adventure, we would love to talk with you.  Please contact us! 


Here are some resources that have been useful and important to us.

Reece's Rainbow- this is a website that helps find families for orphans with Down syndrome and other special needs.  This is where we first found out about our latest addition to our family.

Bethany Christian Services- this is the adoption agency we used for our domestic adoption:

Open Door Adoption- this is the adoption agency we used for our international adoption:

National Down Syndrome Adoption Network- this website find families for US children with DS whose birth families are not able to parent them.  We did not use this website for our domestic adoption, but we did find it helped educate and make us more aware of the need to support birth parents facing the diagnosis of DS.

Orphan Justice: How to Care for Orphans Beyond Adopting by Johnny Carr- this book really moved our hearts to the plight of orphans internationally.  It showed us that while donating money to the cause is great, there are some of us that could do even more than that and become a family for one of these orphans.  Very life changing read…
ORPHAN JUSTICE

Sunday, October 2, 2016

BEN'S LIFE BEFORE US


This is Ben's orphanage in Vilnius.  This is the gated entry, and then this fence surrounds the entire outdoor play area.  So no matter where the children look, they are fenced in.  I understand the necessity, but it does sort of contribute to a certain mindset for the children...

In terms of orphanages, I think this orphanage was not bad.  From what we have read about other families' experiences in other countries, I think the care here was adequate, nothing neglectful or abusive at all.  

However, growing up in any orphanage, even a good one, still is not the optimal setting for a child.  Even though Ben's physical needs of food, clothing and shelter were being met, Ben did not grow up with the love of a mom and a dad who were a constant and consistent part of his life.  Ben grew up with a herd mentality, always one of a group.  Nothing was personalized.  Everything, playing, eating, bathroom, was done as a group.  

Now even though Ben is part of a family of 7, he is learning one on one attention, being able to have toys that he can play with and not have to worry about someone taking them, he has privacy in the bathroom and getting dressed, food is served to him and never a matter of who can get to it the fastest.   

So part of me is grateful that if Ben did have to spend 6 years in an orphanage, at least it was one where he was safe and cared for.  Of course, there will always be the part of me that is heartbroken for all the things he had to endure alone, without a mom by his side.  6 years that are lost and can never be gotten back.  We can only hope the rest of  his years make up for those first 6 without a family.




 This is Ben's room at the orphanage.  We found out this past year for Ben was one of many changes.  Groups were combined and switched around so Ben was actually with a lot of new kiddos this past year as well as some new caregivers.  Some of Ben's friends from past years were either adopted or sent off to the mental institution.  So much of what had been constant in Ben's life had changed for him this past year.  The new group of kiddos Ben was with was not the easiest group.  Many of the children suffer from FAS.  What we observed was a few of the kiddos in the group yelled and screamed a lot.  We didn't see a lot of play and interaction between the kids, more of a scrambling for who could get the toys or the snacks that were available.  
It seemed like Ben didn't have a lot of socializing even though he was in a group of 
10-12 kids.Loneliness in a group is 
how we would describe it.  


This is the main playroom for Ben's group.  It is nice because it has big windows which they would open for fresh air.  What was weird to us is there were toys, but it didn't seem like kids had much access to them, at least not when we were around.
  

This is the sleeping room for the children.  There were 3 beds on this side, and then 4 or 5 beds on the other side of the room.  What is funny is the bed that Ben is laying in is not his bed.  We didn't know that at the time.  We thought he was showing us his bed.  We later learned he was on the other side of the room, Bed #4.  This was an example of Ben trying to see what he could get away with us- because a caregiver would have scolded him for being in someone else's bed.  




When I think of the many times I go up to Jonah's room during the night to comfort him, and then I wonder if Ben was ever comforted when he cried out...I think it probably depended on the caregiver on the shift that night.  Ben still does lots of self-rocking when he puts himself to sleep or during the night if I go up to check on him.  If I am sitting by him, I always try to take his hand or hug him and let him know he is ok.  Self-rocking is a form of self-soothing- a behavior orphanage kids learn because they don't always have a grown up there to comfort them.  


This is the bathroom for Ben's group.  These were their bath cubbies which contained each child's towel, toothbrush and cup.  However, my observations of watching the group go through at bathroom times was that often kids grabbed the wrong towel to wipe their hands and faces.  

What I did not take a picture of was the group using their potty chairs or the toilet.  Often the kids all did their thing in front of each other.  No privacy.  It was often chaotic and lots of yelling and fussing.  

I think this is why the area of the bathroom is one where we now have control issues for Ben.  For one thing, in the midst of all the changes that have happened to him in the past 2 months, this is one area he can have control of- you can't make a child go to the bathroom.  It really is up to them.  Plus, I think the bathroom time at the orphanage was very routine but also very hectic.  I think the bathroom is a place of stress for Ben even at our home where he has the privacy and dignity of being on his own.  It will just take time for him to feel comfortable with this new routine.


This was the baby room Ben first came to when he arrived at the orphanage at 3 weeks old.  There is this big crib which can hold 2-3 babies and then on the other side of the room there are 3-4 more cribs.  When we visited this room, all the cribs were full with beautiful precious babies, some which had some pretty serious health issues.  Broke my heart....



 If you look closely, Ben is in the middle of these balls.  This ball room was a special play area that 1 or 2 children would get to visit ever so often.  So us taking him to the ball room scored some BIG points with him.  Of course, after 4-5 days of the ball room, even Ben was getting bored of it.  


This is the play shelter outside for the children.  We received a copy of Ben's schedule at the orphanage.  The children are outside for about 2 hours in the morning and 2 hours in the afternoon, no matter what season it is.  I think this is why Ben plays so nicely outside.  That is what he is use to.  Ben has a harder time playing inside- he doesn't know what to do with toys.  He is not very creative or imaginative.  I don't think he ever had much chance to play with things- it always was about a fight over the toy with the other kids.  We hope in time Ben will learn to play and HAVE FUN like any other little 6 year old boy.  


This is the playground for the children.  It actually was a very big area with pretty nice equipment.  There was even a trampoline.  The caregivers would often take the children for walks through the woods surrounding the orphanage property.  I liked the kids had so much time outside- fresh air is good for kids.  



So there is a breakdown of Ben's life at the orphanage.  He was safe and cared for.  His health was looked after.  He was provided 3 meals a day.  He was given some therapy, some art and music classes.  Not awful, just not right.  A child deserves and needs the love of a family.  

And one must not forget, that had Ben not been adopted, his time at this orphanage was coming to an end.  He was on his way to being transferred to a mental institution because of aging out of this orphanage.  So even if Ben enjoyed and felt comfortable with his life at the orphanage, that was not going to be his life for much longer.  And no mental institution is going to be a good place for a CHILD to grow up.  

So when Ben fights me or resists my love and care, I have to remember, at the very basic level we have protected him from the awful fate of the institution.  In time, I hope we become more than that to him.  I pray we become the love of his life.  But right now, we are taking baby steps in our relationship- it will take time, love, and lots of patience to help Ben understand he is part of a family who adores him.  

God's hand of protection has been on this little boy since before he was born.  We are grateful for the care he received at the hospital when he was born, and for the care he received at the orphanage.  

Ben is one special little boy!




BECOMING BROTHERS

We don't know when it happens during the night, 
but this is what we find most mornings 
when we get the boys up.  


Sunday, September 25, 2016

NO MORE HIDING!

During our adoption process, there were 3 families who were over in Lithuania adopting their children. These families took the time to visit with Ben and give us pictures and updates about him.  This was very precious to us because when someone you love but never met is so far away and you are waiting so long to meet him, any little morsel about him is greatly appreciated!  All these updates just kept making us fall more in love with him.


Well, we can finally share these treasures- we don't have to keep them hidden anymore.  Some of these pictures are directly from the orphanage, some are from the families mentioned above, and some are from Silva when she would have visit Ben during our adoption process.  

Enjoy a walk thru Ben's 1st six years!



I know this one was in a prior post, but this is Ben at 3 weeks old, when he came to the orphanage.

August 2011, 1 year old.  
This was Ben's orphanage ID card photo.


April 2012, almost 2

November 2012, almost 2 1/2.  
This was the first photo we saw of Ben on 
Reece's Rainbow.  Little did we know...

February 2013, 2 1/2 years old

August 2013, 3 years old.
This was Ben's orphanage ID photo.

December 2014, 4 1/2 years old.

June 2015,  5 years old.  
An adopting mom takes time to snuggle with Ben.  She comments on how sweet and very bright he is.

August 2015, 5 years old.
This is Ben's orphanage ID photo.

January 2016, 5 1/2 yrs old.  
Another adoptive family takes time to visit with Ben.  This is the grandma playing with him.  What you don't see is just to Ben's other side is the caregiver at the orphanage that was Ben's special mama.  
She cared for him since he was 3 weeks old.  Ben really bonded with her over the years.  We are very grateful for the love and care this woman gave our Ben.  She always prayed a family 
would come for her special boy.  

March 2016, 5 1/2 years old.  
Another adoptive family takes time to visit with Ben as well as Silva, the in country adoption worker.  This family also comments on how bright Ben is.

April 2016, almost 6.  
Our son's claim to fame!  This is the president of Lithuania speaking at the orphanage.  At the time we saw this photo, we wondered how did Ben get so close to the president?  Now knowing his personality, I can definitely figure out how he got so close to the president- he just marched up to her because that is what he wanted to do- Ben is a very determined little fellow-hee, hee.  The other neat thing about this photo is the reason the president is at the orphanage.  She is trying to make people more aware of the orphan situation in Lithuania.  One thing that is starting to happen is offering help and support to families with kiddos with Down syndrome in order to help them parent their children rather 
than have them end up in orphanages.
 

April 2016, almost 6 years old.  
One of the last photos we got from Silva before our trip over to bring Ben home.  






Monday, September 19, 2016

WHAT WE WOULD HAVE MISSED



I just read something written by a mom who adopted a child with Down syndrome- she wrote about what she would have missed if they hadn't adopted their little boy.

That really struck me.  What if we had said no?  Look what we would have missed...


Friday, September 16, 2016

HAPPY HEARTS

Today Ben had his cardiologist appointment in follow up to his heart surgery he had in September 2012.

Ben’s surgery at 18 moths: VSD, ventricular septal defect. 

Everything looked great!  Praise the Lord!

What really touch me though was that during the set up of the EKG, Ben got very scared and upset.  And he called out, "Mama".  He looked to me for help and comfort.  I was so privileged to be able to be there for him when he has been through so much without a mama.  But today when he needed a mama, he finally had one at his side.  

That made this mom's heart very happy!

On a side note,  "One healthy boy"- that is the phrase we have heard at each appointment we have taken Ben to: pediatrician, ENT, eye, and today cardiologist. The cardiologist was very impressed with the quality of Ben's heart repair that was done at the Vilnius Children's Hospital. 

Praise the Lord for Ben's good health! I tell you, this child was a hidden treasure in that Lithuanian orphanage!