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JONAH'S HEALTH HISTORY

Wednesday, June 14, 2017

NO SCHOOL?????

I guess you can take the boy of out of school, but not school out of the boy.

Jonah got the backpacks ready to go this morning thinking he would be off to school as usual after breakfast.

Jonah really misses school.  This is the first summer in his 4 years of school that he actually noticed the change in routine for the summer.  

I am so happy that school is such a source of joy for him and not frustration.  It is my hope and prayer this continues!  

Ben isn't really showing any feelings positive or negative about the change in routine.  Probably because Ben's entire life has been changed this past year so what's one more new thing, right?

Because it is so important to keep things fresh in the boys' minds during the summer, this is how we are doing "school" this summer:  

1. I am trying to work 30 minutes a day with the boys.  

2. Jonah's 5K teacher is tutoring them once a week (isn't that nice????!!!).  

3. The boys will also be having tutoring once a week at Gigi's Playhouse in Milwaukee.  Gigi's Playhouses are Down syndrome achievement centers located across the United States.  They are amazing places! Here is the link:
Gigi's Playhouse 

4. And student majoring in special education from a local college is also working with the boys once a week.  

So hopefully, with all that input this summer, the boys should not take any steps backwards for school in the fall.  

Finally, the boys will have a month of swimming lessons and possibly a week at Vacation Bible School. 

Whew, sounds like this mom is going to have to be organized to get them where they are suppose to be!

The reason we are not sending the boys to the summer school offered by our district is because our school can't offer one-on-one support during the summer.  The boys' teachers felt that having them in school without the proper support might lead to them thinking school is a place they can misbehave.  After all our hard work of showing them how to act appropriately at school, we didn't want to risk jeopardizing that.  

So that is why we are doing this hodge podge of "school" this summer, but I think it will work. 

Teaching the boys to be flexible and go with the flow is a life skill they need so this will probably help serve that purpose also.





Sunday, June 11, 2017

WALK THIS WAY

The boys and I went for a walk the other day.  Please note, this walk was only down the block and back!  

Some things to know:  the federal safety guidelines must have changed because it now seems a life jacket is recommended for riding a bike instead of a helmet, and even suggested for safety when walking.

I am hope these make you smile!








Do you walk this way?  Might be more fun...


Thursday, June 8, 2017

OUR AMAZING JONAH

Although this blog primarily tells the story of our adoption of Ben, today I would like to give you some Jonah history.  

This little boy's adoption story is as incredible as Ben's, although very different.  Jonah was a domestic adoption only 20 minutes from our home.  That in itself is a huge difference considering we flew over 5000 miles for Ben!  However, the miracles that God worked to bring us and Jonah together are still incredible!  

And as I think about Jonah completing 5K today and moving onto 1st grade, I am just in awe of how the Lord has watched over him and helped him learn and grow and stay healthy.  So I wanted to take a stroll down memory lane for Jonah because his story is amazing!









LAST DAY OF SCHOOL

The boys before school.  Take note, by next fall there will probably be 2 houses built in the background.  13 years we got to enjoy open field!


I have to include this photo of our Lydia.  She graduated from 8th grade today!  Lydia received the Presidential Award of Education for having a GPA over 3.8 for the past 4 years!  We love our Liddy!


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Ben with his 5K teacher

Jonah with his 5K teacher

Jonah with his special education teacher and aides from the past 4 years.  
I wasn't able to get photos of his speech, physical, and occupational therapists.  

Ben with his special education teacher and aides. 
I wasn't able to get photos of his speech, physical, and occupational therapists. 

Today is the last day of 5K for the boys.  Next year is a big leap for them going into 1st grade.  They will be in a new special education room for grades 1-4 so new teachers and aides.  For Jonah, this is exceptionally huge because he has been with same special ed teacher and aides for the past 4 years!  They are like family to us.  

So today is a happy sad day for me.  

I am happy because I am so proud of what these boys have accomplished this past year and for Jonah, the past 4 years.  I am excited because they have such great potential to grow up and do amazing things.  What some see as a disability, I see them having Down syndrome as part of what makes them unique, beautiful, and incredible individuals.  I really believe the sky is the limit for these two!

I am also happy because of the amazing group of teachers and aides that have worked with Ben and Jonah the past year and 4 years.  These ladies are an amazing group of women who definitely show their love and concern for their students.  They have taken the challenges that the boys have presented and helped them (and us) overcome those challenges with dignity.  No one at school has ever made me feel like they were disappointed or frustrated with Ben and Jonah.  Every curve ball was taken in stride, and everyone pitched in to help them and find a solution or better way to do things.  What a blessing we have had with our experience at school!  

So a big shout out to Mrs. Suhorepetz, Mrs. Seider, Mrs. Claerbaut, Ms. Laura, Mrs. Poole (1st 3 yrs with Jonah), Mrs. Brochtrup, Mrs. Brayshaw (1st 2 years with Jonah), Mrs. Kloiber, Mrs. Schmitz, Mrs. Brill, Mrs. Velzke and Mrs. Hoffman.  Thank you to all of you.  We so appreciate your help!!!!

I am also happy because summer is such a fun time of year, time to relax and go exciting places like Niagra Falls and Mammoth Cave.  Time to swim and go to the beach.  

I am sad because the last day of school means that all the kiddos just keep getting older.  Stephen is going to be a senior in high school next year, Lydia a freshman, and Abigail will be in year 2 of college- oh my!  I don't handle change well  (maybe Jonah gets his difficulty from me?).  

So I leave you with these two funny cartoons that I think moms will find funny...







Monday, June 5, 2017

LIFE IS REALLY GOOD: TERRIFIC NEWS!

PRAISE THE LORD!

I just noticed that 2 of the kiddos in the video from our 5-29-17 post are now listed as "MY FAMILY FOUND ME"!!!!!

This probably didn't happen as a result of the video- I either missed that MFFM was in these children's listings or there was an update happening at the same time the video was being made.

However, it is terrific news no matter how it came about because 2 more precious children are going to have families that love and treasure them.  Thank you Lord!

What a great thought to fall asleep with tonight!

Congratulations STELLA and SEAN!  You deserve this!

stella

sean

Here is the video- wouldn't you love to keep hearing more terrific news about more of these kids getting families?


LIFE IS GOOD!



Ben is a picky eater.  He eats healthy which we are very grateful for, but he certainly doesn't eat whatever we eat.  However, we found out he does LOVE popcorn!  He had it as his supper 2 weeks ago when we were at Stephen's track meet.  The only supper choice there was hamburgers which Ben does not eat so we figured popcorn was the next best thing.  We made up for it the next day :) 

In this photo, Ben was enjoying the tradition of "whatever you want Sunday supper" which sometimes means popcorn!  He had three helpings.  I just love how happy he looks over popcorn!  I bet the orphanage never had a fun meal like that.  

Notice Jonah's photo bomb....




And this photo is from Ben's birthday party.  I forgot to include it in that post.  Ben got up into into this tractor all by himself.  If we had left him alone, he probably would have figured out how to operate it!   Ben is very smart and observant.  Not much gets by him.  Again, I love seeing Ben so happy.  One of the reasons the difficult days are hard is because I just feel bad that Ben can't just relax and enjoy life.  So it warms my heart when I see him having so much fun!

P.S. I am whispering this:  We are still in a really good place lately with Ben.  He has been super pleasant, very cute, and doing lots of playing, looking at books, and listening to his Veggie Tales CD.  

Thursday, June 1, 2017

SOMETHING TO THINK ABOUT

“When I grew up in the orphanage it 

was Christians who came and built 

nicer buildings. Christians who bought us 

beds, clothing and provided money 

monthly for food. It was a Christian, 

who wrote a letter in a shoebox, who 

first told me I was loved. It was the 

Christians who met all my physical and 

material needs in that orphanage.

But it was also Christians who neglected my biggest need. Children in orphanages don’t need more money, nicer buildings or better clothes. I am not an orphan because I lost my home or provisions. I am an orphan because I lost my parents. I needed a mom and a dad. I needed a family. Christians treated all my temporary symptoms of need but never cured my long term disease of being orphan. I am still an orphan.”
– A quote by a 30yr old orphan, who aged out of an orphanage where he had lived his whole life. Spoken at the CAFO Summit 2013