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JONAH'S HEALTH HISTORY

Tuesday, May 30, 2017

HAPPY BIRTHDAY BEN- EARLY!

Because we are going to be on our family vacation over Ben's birthday in June, we decided to have his big party this past weekend.

Cousins, aunts, uncles, and Grandma and Grandpa came to celebrate!

I don't have to say much about it because I think the photos show the pure joy on Ben's face!  I am guessing this was his first birthday party ever- I don't really know how birthdays were acknowledged in the orphanage, but I can't imagine it was anything much.

In any case, we wanted to make up for lost time and give him a party to remember:  bouncy house, pony rides (which he didn't do, but he told everyone else they should-haha, that's our Ben!), feeding the goats, presents, and cake and ice cream.  Doesn't get much better than that!


Ben with his Batman cake

What a smile!

Jonah- is modeling in his future?

Ben feeding the goats.


The boys with Abigail

Batman PJs for both boys!


The sign of a good party- you fall asleep standing up!  This is Jonah.


Monday, May 29, 2017

I SAW WHAT I SAW AND CAN'T FORGET IT

Back in 2014, before we decided to adopt Ben, I was brought to my knees when the Lord showed me what was happening to orphans with special needs all around the world.  It was time for me to decide if I was going to be part of the problem or part of the solution...

And even though it has been 10 months since we brought Ben home, I think I am still processing things I saw and learned from our time at Ben's orphanage.  I had read about these precious children spending their days in orphanages, but now I was meeting some of these children in person.  I saw for myself the emptiness in their eyes, their longing to be loved and hugged, their excitement to have a "mama" and "dada" visit their room.   

These are things that I will never forget.   As I read in one adoption blog, you can't un-know what you now know.

So even though our adoption is done, I can't forget about the many more children that still need a family.  Ben is just one child- there are many more still waiting as he once was.  

Each of those children needs ONE FAMILY to step forward and claim him or her as their own.

ARE YOU THAT ONE FAMILY?


This video is based off one I found on an adoption blog from 2009.  I updated the photos, but kept the song and Bible verses the same because they really touched my heart.



Friday, May 26, 2017

BECOMING A MOTHER

I know Mother's Day has come and gone, but today is our oldest's birthday so 19 years ago today is when I first became a mother.  What a special day!  I never imagined that we would go on to have 2 more biological children and then adopt 2 children, as well as taking care of 15 foster babies from 2008-2016! 

God certainly had plans for me that I had no idea about when I first held beautiful little Abigail in my arms 19 years ago.  Thank you Lord for planning such a nice journey for me through the world of motherhood.  It is the best job I have ever had!

Sorry some of the photos are positioned incorrectly- they look right until I try to load them onto the blog.  Oh well, you still get the picture...



Abigail Joy- 1998

 
Stephen Carl- 1999

Lydia Grace- 2003

Jonah James- 2010 (he was 3wks old)

Benjamin Kostas- 2016 (he was 6 years old)




Thursday, May 25, 2017

I AM GOING TO WHISPER THIS...

I am whispering these words because I don't want to "jinx" anything...

Just kidding, I don't really believe in jinxing, but I don't want to get too overconfident so that is why I am posting these thoughts with some reservation. 

The past 2 weeks have been really nice and good with Ben.  We are getting along much better, but most importantly, he just seems very happy and mellow.  That is what I want most for him- to relax and enjoy his new life here rather than deal with pain and grief and difficulty in adjusting.  

I am sure we will have a downward swing because that tends to be the pattern in this transition process, but I am so thankful to the Lord for the nice 2 weeks we have had.

I can't say for certain that things improved because of anything we did (besides pray!), but we have been more intentional in offering Ben things for his sensory diet.  Some people may read that and think I am nuts, but the research I did on sensory deprivation issues did seem to point out that might be some of what is affecting Ben.  

Here is an excerpt from one article I read that discussed sensory deprivation disorder and Down syndrome.  Obviously there is even more to read about sensory issues and how it relates to children who have grown up in orphanages.  

"Some of the children I have seen through Down Syndrome Clinic who have DS-ASD demonstrate the areas of concern discussed above. Families will usually report that their child was developing within normal limits for a child with Down syndrome only up until they were around a year old. At that time, they began to demonstrate decreased skills in playing, social interaction and many abnormal behaviors. Some on these reported behaviors include shaking fingers, chains and similar objects in front of their face, food refusal, looking directly into a light source and preservative type motions rather than purposeful play. Some of the other behaviors that have been reported or observed by families of children with DS-ASD include:

  • Decreased or no eye contact,
  • Excessive mouthing of objects,
  • Decreased or no purposeful play with toys,
  • Staring directly into lights,
  • Abnormal hand movement (such as flicking fingers in front of eyes or waving hands away from body),
  • Refusal to hold objects (such as clothing or a spoon to self-feed),
  • Picky eater (especially for specific textures),
  • Flat affect,
  • Self stimulatory behaviors (such as rocking, banging head, humming or screaming), and
  • Decreased interaction with people."


Ben experiences mouthing of objects, decreased purposeful play with toys, flicking hand in front of face, picky eater, self stim behaviors, and decreased interaction with people.

Because of these behaviors, we decided to try to give Ben some good sensory experiences in hopes of helping him relax and be more at ease with life in general.

Things we have done:

1. sensory bin filled with high sensory toys- lights, music, textures, etc.

2. having him sit on a "Lean n Learn" seat cushion at the kitchen table along with a weighted lap pad.


3. wrapping Ben in big quilt and swinging him.  He loves this!  I am trying to convince Andrew to put up a swing in the house- he is not on board with that idea yet....


4. playing sensory stimulating and/or calming videos (depending on his mood) while boys are playing.

5. And my very favorite thing is having boys listen to Scripture Lullabies while they play- God's word is more powerful than anything even the experts come up with, right?   I think any child would benefit from having these beautiful words sung over them:


I also did try to have intentional cuddling time with Ben, but he is very resistant to cuddling with me if I ask him to.  He will initiate it with me sometimes, but it did not work for me to initiate it with him.  I talked with our social worker about this, and she recommended not forcing this with him.  She said to let him cuddle with me as he feels comfortable with.  I have to admit that it is hard to have your child not want to snuggle up with you, but I am hoping and praying in time, Ben will have a trust and security with me that allows him the freedom to do this.

I also looked into therapeutic listening but haven't tried it yet.  CDs are rather expensive so I have found a playlist on YouTube, but I don't think that is probably the same quality as the product you would purchase.  The other hindrance to this idea is finding the 30 minutes a day to have Ben sit and listen to this with headphones on- seems like that may cause more of a battle than its worth, but I still think it's an interesting idea.


So those are the things we are trying to do with Ben.  Are these the reasons we have had a good 2 weeks?  I cannot say for sure.  Again, we may have another rough stretch start in a day or two.  Its a marathon not a sprint- that's what I keep telling myself.  You can't expect 6 years of orphanage life to disappear in less than 1 year- that isn't how this math works.

I will end with some cute random pictures:


Ben is very happy his "Bubba" (Abigail) is home from college!  Interesting though that he will often try to call her "mama" and me "Bubba".   I am thinking there is some deep pschological meaning to this...we just continue to remind him that I am his mama.



I took the boys to the nearby children's museum where they had so much fun playing in the fire truck exhibit!  Why am I not surprised Ben is the driver?  That kid is a born leader!






Monday, May 15, 2017

BEN'S FIRST MOTHER'S DAY


Ben 
Praise the Lord!  God allowed me to be Ben's mother and celebrate his first Mother's Day with him!  At school Ben made this beautiful card along with a ceramic hand print.  



Adoption has two sides to it: great joy at the cost of great pain.  

Yesterday I thought about Ben's birth mother and wondered if she was thinking of Ben, the little baby she never got to hold and kiss and cuddle.  The baby that she wasn't able to bring home with her from the hospital because the world she lived in condemned him and said there was something too wrong for him to be fit to be her son.  Does she live with guilt and grief?  Does she have any peace knowing he is now in a family and no longer living at the orphanage?  I don't know, but my prayers were with her yesterday. 

I also thought and prayed for Jonah's birth mom.  Totally different situation than Ben (we have an open adoption and constant contact with her), but I know Jonah's birth mom still suffered great pain when she made her decision to place Jonah for adoption.  I am so indebted to her for allowing me to be mom to wonderful Jonah!


Jonah
   






Thursday, May 11, 2017

THE MYSTERY OF BEN

First some fun stuff:

Did you known Batman and Robin live at our house?  
Batman is the boys' new favorite obsession!
So glad both boys have capes- 
see the post about the capes if you want to read a really neat story!


Did you know if you stand on a bean bag chair, you can catapult yourself into your brother's crib?  This is what Ben figured out how to do in the morning.  We have since had to remove the bean bag from the room because the boys were starting to have a wrestling matches in the crib which didn't always end well :)  And yes, to those of you wondering, Jonah is in a crib yet.  We tried a bed for a few months, but Jonah was getting out during the night and jumping on his brother Ben.  Just made me too nervous.  Jonah loves his crib, and both boys get good night sleeps this way.  

Now some hard stuff:

The past month has been hard.  Ben is much more defiant as of late and much more resistant to me.

Did we expect this?  Of course.  We knew this would be a huge adjustment for all of us with many ups and downs.  One of the best pieces of advice we got going into this journey was "This will be a marathon, not a sprint."

Respecting Ben's privacy and dignity, in general terms this is what we are dealing with recently:

1. Defiance over almost anything I request him to do.
2. Often speaking in an angry voice
3. Resistance/reluntance to touch either for personal care (ie. combing hair) or for affection.

The challenge is finding out the "why" behind the behavior.  We think there are actually a few things going on:

1. Ben is dealing with sadness/grief over his past life.  Ben lived 6 years in his orphanage.  I'm sure he has some fondness for his time there.  Afterall, he had his special mama caregiver and friends in his groupa.

2. Ben is fearful or unsure about how long his time in our family will last.  He may not understand or comprehend when we tell him we are his forever family.  He may be wondering when this will end and he will have to leave.  For the past 6 years, he watched caregivers and his friends come and go.  Ben hasn't experienced many permanent people in his life.  Maybe part of is starting to really enjoy our family, but then he comes up against his fear of what if we leave him too?
3. Ben is angry at not being able to get away with things he probably did at the orphanage.  This is most directed at me.  Him and I are one-on-one quite a bit during the day which means I can keep a very close eye on him.  I think he resents my constant presence in his life.  He's never had this much consistency or follow thru in his life before, and he may not be liking it so much.
4. Ben is testing us.  How far can he push us? And what happens if he goes to far?
5. Ben is almost a 7 year old boy.  He's going to be defiant and loud and unruly just because that's what little boys do.
6. Ben has Down syndrome.  In my experience, some kiddos with DS have a hard time with transitions especially when it's going from a highly desired activity to a less desired activity (of course, don't we all?).  Sometimes kiddos with DS are less inhibited and just let their true unfiltered emotions show.  If he doesn't like something, he yells to let me know about his dislike.

So we are aware that what is going on with Ben is probably a mixture of these 6 issues.  Of course, coming up with ways to help Ben and us is a bit more complicated when there are several causes for the behavior.

Here is what we are trying right now:

1. Positive feedback for good behavior.  We are using a reward chart with a miniature candy bar for every 5 stickers earned.  I am picking my battles at this point, and nutrition and good dental health are at the bottom of my list.  Ben loves chocolate, and it very much motivates him!  Our social worker did recommend we give Ben a chance for a redo if he makes a poor choice, and then reward that redo just as if he had made the good choice right away.
2. Clear consequences for poor choices.  We are using loss of a privilege (toy, game, etc), timeout, or quiet time in his room to help him regroup.  Our social worker suggested maybe trying "time in" which I will have to research to see how that works.  It's a new concept to me.
3. Trying to help Ben's sensory diet and helping him experience what he may have missed as a baby/toddler- rocking, wrapping in blanket, sensory bin, sensory videos to help calm, etc.

So for now, we are hunkering down and trying to help all of us through this rough patch.

I choose to share about this because one of my hopes for this blog is to help other families be informed and aware of what is involved in adopting a child from a hard place.  I believe being prepared for the difficulties helps you deal with the difficulties better.

I read a bumper sticker recently that said, "Jesus loves you, I am trying."  That made me laugh.  Then I started thinking about it in terms of Ben.  Sometimes I feel like I am trying to love Ben, but he is resisting me.  Then there are the times I don't respond to Ben the way I should.  This is a messy and complicated thing we are trying to do- bringing Ben into a new life after 6 years of his old life.  It will probably be one of the hardest relationships I will ever have to work for.

But Ben is so worth it!  He has a smile that lights up the room.  When he tells me he loves me, it melts my heart.  When he asks for help or wants to sit on my lap, I am reminded our relationship is moving in the right direction.  Ben is such a bright little boy with SO MUCH POTENTIAL!  He is going to go places in life, and I am amazed that our family has the privilege of being part of his awesomeness!  

Ben is definitely a mystery worth solving!

Besides sensory calming videos, I am trying to have Ben listen to scripture lullabies.  
Here is one of my favorites:


Thursday, April 27, 2017

HUMBLED


Today we received a letter from the child we sponsor through the Compassion program.  Marie lives in a small country in West Africa.

If you have never heard of Compassion, check this program out.  It is amazing program that allows you to sponsor a child with a monthly donation of $38 as well as correspond back and forth with the child.  You also have the opportunity to give donations for the child's birthday and Christmas.  

We respect this program because it is managed very efficiently meaning the children receive most of the donation (82%).   

Compassion

In our letter today, Marie explained what her family purchased with our Christmas gift: 20 bowls of corn, soap, a sack of rice, a big bowl, oil, sardines, plastic bucket, beans, etc.

What a different list for Christmas than mine would be!  I was humbled that Marie used her Christmas gift to help bless and support her family by buying basic foods and supplies.  

It made me realize (again) how hard many children in the world have to work to just survive and live.  I realize (again) how grateful I should be for how easy it is to live my life here in US.  

That is why it so important for us to share the blessings God has given us here in this country with those around the world who are experiencing hardships and difficulties, especially children.  

Here is the photo Marie included with her letter to show us what she purchased.  Doesn't exactly look the toy aisle at Christmas, does it?