The boys have been busy at school in their new special education room. Here are some photos from their Create Group Time. They are making leaf wreaths.
OTHER NEWS:
As part of Jonah's 7 year check up, his pediatrician did a thyroid screening because thyroid issues are very common with Down syndrome.
Most people with Down syndrome who have a thyroid issue deal with hypOthyroid or low thyroid. It is much more rare to deal with hypErthyroidism or high thyroid. This is true for the general population as well as people with DS.
Jonah's thyroid screening came back high. We were sent for additional bloodwork at the Children's Hospital, and the diagnosis at this point is Jonah is presenting with a combination of Grave's Disease and Hashimoto's Disease- both are autoimmune conditions that cause hypErthyroidism.
We were hoping it was just an infection that was causing a temporary jump in Jonah's thyroid. Unfortunately this is not the case.
HypErthyroidism is a treatable condition although it can be rather tricky to find the right medicine. The medicines available can be hard on a person with possible side effects being rash, low white blood count, headaches, muscle aches, and nausea. Of course, these side effects are not highly likely to happen, but as a mom I am worried about giving my little guy such a powerful medicine.
However, to not treat Jonah's hypErthyroidism would put him at risk for heart issues, growth and bone development issues, and overall feeling in poor health.
So we will be starting the methimazole tomorrow and getting monthly blood checks to see how the med is working on his thyroid (goal is to shut the thyroid down).
Grave's and Hashimoto's can sometimes go into remission after a period of treatment. Sometimes that remission is permanent and sometimes the conditions come back again after a period of no treatment.
So everything with this is a wait and see. Never a dull moment with Jonah....
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