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JONAH'S HEALTH HISTORY

Tuesday, March 8, 2022

JONAH'S EASTER INTERPRETATION

 


Jonah woke up early one morning and preceded to confiscate our Ipad.  

I don't know about you, but for Jonah, the thing he wanted to do at 5 in the morning was make a video of the Easter story.  

Without any help from us.

He found his own props and created his own sets.  His costume was a hooded bath towel to represent the robes worn in Biblical times.  He came up with his own lines.  

He is a one-man-show. 

Jonah's filming is out of focus and lots of jiggling around.  His words are hard to understand.  But we know what he is trying to say and portray.  

So that is why instead of the actual video, we are including still shots from the video with some explanation:


His jackets on the floor are the coats that were thrown on the road for Palm Sunday.  
His script during this part was "Hosanna!"


The stuffed animal horse was the donkey 
that Jesus rode into Jerusalem.


Here Jonah says "Eat all" for the Last Supper scene.


This scene is Jesus being arrested in the garden.  Jonah indicated the purple stuffed animal elephant is Judas, AKA "the bad guy".



This is the crucifixion scene.  
Jonah propped up a couch cushion and leaned against it to replicate Jesus hanging on the cross.


This last scene is the resurrection scene.  
Our love seat cushion is the stone being rolled away.  Jonah's yells "Hallelujah!"

Please don't ever underestimate 
the power of God's word.  

And please don't underestimate a non-verbal child.    











Friday, March 4, 2022

UPDATE: NO NEWS IS GOOD NEWS

February has rolled into March and Easter is just around the corner.

Time flies.

While the world has much activity and heartache at this time (Ukraine situation), our lives in small town Wisconsin have been relatively uneventful.

The boys had GREAT progress reports from school to finish the 1st semester.

Jonah's IEP meeting in February was very productive and encouraging.  While Jonah's attentiveness continues to be an issue, he is moving forward in his IEP goals.  Not as quickly as his sidekick Ben, but that's ok.  Jonah has strengths in other areas.  He is his own little person who follows his own little trajectory.  

We are proud of both boys.

We are very excited that both boys got accepted into a speech device camp at UW Whitewater called "Chatter Matters".  This 3 day camp this summer will hopefully help the boys and us as parents with how to integrate the device into day to day living.  

Because we got this speech device in early March 2020, we had the unfortunate situation of school shutting down right after that.  Therefore we had no instruction on how to start using it with the boys until Fall of 2020 when school resumed.  But then, Jonah was sick with his kidney/bladder issues, and he was at home for a lot of school.  Ben also joined him at home as Covid became more of a concern in Winter 2020 so once again we were left with a device with no idea on how to implement it into our lives.  

So we are very hopeful that we will finally be able to get a "Speech Device 101" course for all of us.  Our goal is to use this device to help the boys communicate better with people outside their immediate core of family/teachers.

Other things we are hoping to look into for the boys for next year are Special Olympics basketball and track/field.  I would also like to try and get Ben into a social skills group to help him with basic conversation guidelines and manners.  And Jonah will hopefully be taking voice lessons this summer to feed his love of music/singing but also as a part of speech therapy.  We are excited about all these ideas!

So that's an update from the past few weeks.  

We are so grateful and blessed that Jonah's health has been BORING- we are really thinking his kidney issues are more and more in the rearview mirror!  June 7th is his next ultrasound.  


Friday, January 28, 2022

WRAPPING UP JANUARY WITH A GOOD LAUGH!

                                                                                    



Never hurts to have a good laugh, right?

Haven't been writing here much lately.  Here are some reasons why:

1. Getting ready for Christmas

2. Christmas

3. Regrouping after Christmas

4. It's too cold to think...we haven't had much snow, but we have had some very cold weather stretches.  Good weather to just stay cozy and warm at home, which is one of the reasons for my next reason:

5. Reading lots of books.  I've always been a big reader, but the last few years, I've experienced some dry spells of not reading much at all.  However, this January, reading has taken precedence in my life again.  To the point where I sort of feel I'm ignoring the human beings around me.  A good book is pretty tempting!

6. Probably the most interesting reason of all: the boys' behavior has been pretty "typical" lately.  We are just having routine days of school, homework, having fun, and then to bed.  To me, this typical behavior is quite the accomplishment.  Sometimes because of Down syndrome, we hit road blocks and obstacles that we have to try and figure out how to help the boys through.  But these past weeks, they have been acting like just typical boys who sometimes are good and sometimes are naughty, and not as many challenges due to their special needs, if that makes sense.  It's been nice to be ordinary for a spell.  I'm very proud of these guys.  They work hard at school (especially Ben) and they are really learning to roll with things better.  They are funny and sweet!  And they make us laugh!

So that has been what's happening the past couple months.  Here's hoping for more ordinary!

  




Wednesday, January 26, 2022

Monday, January 17, 2022

MLK DAY AT HOME

Found these resources to use at home to study Martin Luther King Jr. Day with the boys.

They are home with cold symptoms...waiting to see I will test them for COVID.  Our new normal, I guess.

Click HERE for MLK Handwriting activities 





Saturday, January 15, 2022

GREAT RESOURCES

 


I love the Got Questions website/app which I sometimes utilize during my Bible time.

This morning I stumbled upon Got Questions for kids!  I found the website, I'm not sure if it i
s available as an app also...

Two Great Resources!